Infusion 17 & miss genola

This post has been along time in the making. 1st my computer just got fixed and you'ldpli think we were good to go, not quite everything seems to be working fine but when I get on my blog my Internet tells me the browser isn't working and kicks me off, all the other sites I've been to work but this one arghhh!!!!! To start things off infusion 16 went without a catch everything goes the same old same old. Easton is still doing really well with changes including but not limited to trying to hide things he knows he shouldn't have or do which shows a real significance about his ability to realize choice and consequence and cause and effect, he is also talking clearer and with more complete sentences like mommy I need your help with this. Or do we have baseball today? Then he'll proceed to explain to me how the game is played and what each teams does when they are batting or out in the field he is currently on the local baseball team and knows that when it's his teams turn to be in the outfield he has to play his position and if the ball doesn't come near him he has to let someone else chase it this doesn't always happen because he is only 5 but still it's great. He is becoming more and more independent with all activities he can do most fasteners himself such as buttons,snaps,&zippers. On a negative note he also got pneumonia this month with no symptoms other than a fever it was crazy no cough, or cold symptoms. So he has missed about half of his games do to this and flying back east.

Now for infusion 17 it also went well. We were able to give him conscious sedation we gave him less of a dose but waited longer before trying to infuse him this worked really well other than the fact that he slept until about 3 pm. We took him to duke gardens this time so beautiful and the chapel is gorgeous if I were ever to go away to school live on campus this would have to be my first choice!
For some not so good news about the progress of the trial we have kind of hit a bump in the road the ports that they use have broken in every patient at least once and in other multiple times. So now they have put a hold on new patients they aren't allowing any new patients until they figure this problem out. Which is necessary but also means that the chances of Eastons port breaking again are highly likely which means more surgery but he will also remain getting drug which right now is the most important to us but it also means that this will delay this portion of the trial indefinitely prolonging it's submission to the FDA helping it her kids .

Now I will back track again to mid April Camille tried out for the drill team that girl loves to dance and she made it!!!! Not that I was surprised the girl has a lot of talent she is a natural. I was so proud and excited for her she wanted this so bad. She will be awesome. The following week was our towns Miss Genola pageant, I have helped direct this for the past 4 years and low and behold she won the title it was a very busy and exciting time for our family. Not only did Camille tryout for this but Kaylee was involved in the jr. Miss portion were she danced with her group as well she has a natural ability as well I need a large fence to put around these two until they are 30 they are both turning into such beautiful young women. Not ton leave Weston out of all of this he is keeping us busy with baseball his team has only lost one game so it looks like will be going to state with him. I love every minute of it!