So I will apologize from the beginning about the length of this post, as its going to be long I'm sure, but what can you expect when you haven't written a post for forever. Before I begin Easton graduated from Kindergarten and is ready to move onto first grade.
There have been a lot of changes that have occurred in our family over the last little while the biggest one has been the fact that we moved. We sold our house and moved to Sp. Fork this is a little further north than I had planned but so far we have loved the area, and our views are gorgeous. The kids have all had a some what easy adjustment, Camille struggled the first few days because there aren't a lot of kids here her age and she missed her grandma and friend that live next door but on the plus side she is a lot closer to her boyfriend Jaxon which hasn't been to bad yet since I limited them to only seeing each other twice a week while schools out and between her drill and his football and baseball schedules they really don't have a lot of time for dates. Kaylee has seemed to adjust the best. One of her best friends lives less than a mile away and will go to the same Jr. High next year. She does however ask to go to her old friends quite a bit. This also hasn't been to bad for her because she will get to go to girls camp with our old ward and be with all of her friends from Genola. Weston has always had an easy time meeting new people, and friends. He met a new friend the first day we were here but is often bored and wants to go to his friends house in Genola. I'm hoping that as he starts going to scouts and stuff that he'll meet someone that he gets along with and is his same age. Easton hasn't said to much but he has been so whiny and irritable. It's been hard for him because we had to keep going to the other house to clean get odds and ends and stuff and I'm sure he was confused. He has kept asking me how he will have friends to go to his power ranger birthday party that he wants. As for me and James we've done o.k. I think James struggled the first few days we were here. He loves being in the country and having space and animals. On the other hand I didn't want so much space and was sick of having animals. I also loved my house out there and have so many memories this was the home that I have been raising my children where I've watched many joyous occasions like the birth of a new baby first mile stones. This is also where Nathan took a hammer to our brand new fridge before we had even moved in and also took a black sharpie to the freshly painted walls. This is also the home where I watched as he steadily declined, I watched as this disease took away his ability to walk,to talk and play as he always did. There are also many pleasant memories I have there of him, well all of my memories are sweet some just sting more than others like the memory of his last laugh that I was able to video tape a week before he passed away ( he hadn't laughed in ages). This is also the place where my sweet baby boy layed in my arms as I rocked him and he quietly passed away. After his passing I would often go to my kitchen or bedrrom window and I could see the cemetary that held his body and take comfort in seeing this I also put little solar lights out so I could see him at night. As we were preparing to move I knew that these memories were going to make leaving harder. I also felt that as I cleaned and moved things that I was going to find some little thing that had been lost that was Nathans. As we packed and moved I found nothing so I thought well maybe I will be able to dream of him and feel that peace that always comes from a good dream and these to never happened. So I decided that I would just have to say goodbye and move on. One of the last days I was in the house I was cleaning the drawers wiping them out and decided to take them all the way out and clean behind them, By doing this I found a hidden treasure a little token, I some how knew would be there. It was a little apron my sister had made for him on his birthday. At the time she made this he was needing something to keep his food off of his shirts and bibs were to small and just wouldn't cut it so she made him a red apron with a picture of buzz and woody on the top along with his nickname.
This had been lost for years and I assumed that it had been destroyed or something I just figured it was gone. As I grabbed it from the behind the drawers I was flooded with emotions I knew at that moment that Nathan was always with me no matter where I live and that my heavenly father is always aware of my needs and loves me. That no matter what mistakes I've made I will always be blessed with his tender mercies I just have to recognize them for what they are. After finding this I looked at my empty house and for the first time since packing everything up it didn't feel like home anymore it was an empty shell and all the memories that I had are still here locked inside my mind. Now back to my crazy schedule and on to making more memories. We finished moving the last odds and ends yesterday which was a Wednesday and we are leaving on a family camp out on Monday. So now it seems like everything I just got put away I need to pull back out so we can go camping for a week. Easton is so excited he just hopes I won't forget to buy marshmallows, chocolate,and graham crackers he wants some smores so bad. I hope he's not to disappointed when we have to cook them on the camp chef since Utah has a no burn in effect due to the high fire danger right now. After we get back I have only a few days to get everyone's things washed put away, and mine and Eastons luggage packed so we can go for his 6 month evaluation at UNC for 10 days. What a hectic schedule.
Now for my clinical report of Easton progress. He has been doing really good and has seemed to retain everything he had learned in school so far. I have noticed that he is forgetting some of the site words he had learned but the ones he has forgotten are the ones that they had just taught and I will chalk it up to me not helping him as much during the move. So I guess I can see what we need to start doing a little one on one reading time. His math skills are great he has always had a fascination with numbers so he is continuing to count to 100 and is constantly working on his addition and subtraction. He has had his last 4 infusions via lp and has done ok with the actual procedure. It's been the last 4 times that he has suffered from intense headaches. These usually start about 4 hours after the procedure and we are on our way home from the hospital. They started out just making him cry then he would go to bed and fine then another headache in the middle of the day but same thing he would lay down and it would go away. These have progressively gotten worse. The last infusion that was nearly a week ago his pain was so intense that he cried and moaned the entire way home, this was couple with severe nausea which he ended up throwing up in the car on the freeway while I was stuck in rush hour traffic and construction. He did really well with it I had a handle tie grocery bag in the back and he was able to get most of it in the sack. After throwing up he fell asleep and slept the rest of the way home. He did however wake up later that night with reoccurring pain and was given motrin and put back to sleep. The next day he woke up and acted fine other than he was a little bit more whiny than normal. He also had an EMG earlier in the month that showed severe carpal tunnel, and a trigger finger. I was hoping to get this surgery done before school started but the only available date they had was while I was gone back east so for now he is scheduled for Oct.3rd and we've been put on the cancellation list so hopefully somebody cancels on a day that we can get him in.
There have been a lot of changes that have occurred in our family over the last little while the biggest one has been the fact that we moved. We sold our house and moved to Sp. Fork this is a little further north than I had planned but so far we have loved the area, and our views are gorgeous. The kids have all had a some what easy adjustment, Camille struggled the first few days because there aren't a lot of kids here her age and she missed her grandma and friend that live next door but on the plus side she is a lot closer to her boyfriend Jaxon which hasn't been to bad yet since I limited them to only seeing each other twice a week while schools out and between her drill and his football and baseball schedules they really don't have a lot of time for dates. Kaylee has seemed to adjust the best. One of her best friends lives less than a mile away and will go to the same Jr. High next year. She does however ask to go to her old friends quite a bit. This also hasn't been to bad for her because she will get to go to girls camp with our old ward and be with all of her friends from Genola. Weston has always had an easy time meeting new people, and friends. He met a new friend the first day we were here but is often bored and wants to go to his friends house in Genola. I'm hoping that as he starts going to scouts and stuff that he'll meet someone that he gets along with and is his same age. Easton hasn't said to much but he has been so whiny and irritable. It's been hard for him because we had to keep going to the other house to clean get odds and ends and stuff and I'm sure he was confused. He has kept asking me how he will have friends to go to his power ranger birthday party that he wants. As for me and James we've done o.k. I think James struggled the first few days we were here. He loves being in the country and having space and animals. On the other hand I didn't want so much space and was sick of having animals. I also loved my house out there and have so many memories this was the home that I have been raising my children where I've watched many joyous occasions like the birth of a new baby first mile stones. This is also where Nathan took a hammer to our brand new fridge before we had even moved in and also took a black sharpie to the freshly painted walls. This is also the home where I watched as he steadily declined, I watched as this disease took away his ability to walk,to talk and play as he always did. There are also many pleasant memories I have there of him, well all of my memories are sweet some just sting more than others like the memory of his last laugh that I was able to video tape a week before he passed away ( he hadn't laughed in ages). This is also the place where my sweet baby boy layed in my arms as I rocked him and he quietly passed away. After his passing I would often go to my kitchen or bedrrom window and I could see the cemetary that held his body and take comfort in seeing this I also put little solar lights out so I could see him at night. As we were preparing to move I knew that these memories were going to make leaving harder. I also felt that as I cleaned and moved things that I was going to find some little thing that had been lost that was Nathans. As we packed and moved I found nothing so I thought well maybe I will be able to dream of him and feel that peace that always comes from a good dream and these to never happened. So I decided that I would just have to say goodbye and move on. One of the last days I was in the house I was cleaning the drawers wiping them out and decided to take them all the way out and clean behind them, By doing this I found a hidden treasure a little token, I some how knew would be there. It was a little apron my sister had made for him on his birthday. At the time she made this he was needing something to keep his food off of his shirts and bibs were to small and just wouldn't cut it so she made him a red apron with a picture of buzz and woody on the top along with his nickname.
This had been lost for years and I assumed that it had been destroyed or something I just figured it was gone. As I grabbed it from the behind the drawers I was flooded with emotions I knew at that moment that Nathan was always with me no matter where I live and that my heavenly father is always aware of my needs and loves me. That no matter what mistakes I've made I will always be blessed with his tender mercies I just have to recognize them for what they are. After finding this I looked at my empty house and for the first time since packing everything up it didn't feel like home anymore it was an empty shell and all the memories that I had are still here locked inside my mind. Now back to my crazy schedule and on to making more memories. We finished moving the last odds and ends yesterday which was a Wednesday and we are leaving on a family camp out on Monday. So now it seems like everything I just got put away I need to pull back out so we can go camping for a week. Easton is so excited he just hopes I won't forget to buy marshmallows, chocolate,and graham crackers he wants some smores so bad. I hope he's not to disappointed when we have to cook them on the camp chef since Utah has a no burn in effect due to the high fire danger right now. After we get back I have only a few days to get everyone's things washed put away, and mine and Eastons luggage packed so we can go for his 6 month evaluation at UNC for 10 days. What a hectic schedule.
Now for my clinical report of Easton progress. He has been doing really good and has seemed to retain everything he had learned in school so far. I have noticed that he is forgetting some of the site words he had learned but the ones he has forgotten are the ones that they had just taught and I will chalk it up to me not helping him as much during the move. So I guess I can see what we need to start doing a little one on one reading time. His math skills are great he has always had a fascination with numbers so he is continuing to count to 100 and is constantly working on his addition and subtraction. He has had his last 4 infusions via lp and has done ok with the actual procedure. It's been the last 4 times that he has suffered from intense headaches. These usually start about 4 hours after the procedure and we are on our way home from the hospital. They started out just making him cry then he would go to bed and fine then another headache in the middle of the day but same thing he would lay down and it would go away. These have progressively gotten worse. The last infusion that was nearly a week ago his pain was so intense that he cried and moaned the entire way home, this was couple with severe nausea which he ended up throwing up in the car on the freeway while I was stuck in rush hour traffic and construction. He did really well with it I had a handle tie grocery bag in the back and he was able to get most of it in the sack. After throwing up he fell asleep and slept the rest of the way home. He did however wake up later that night with reoccurring pain and was given motrin and put back to sleep. The next day he woke up and acted fine other than he was a little bit more whiny than normal. He also had an EMG earlier in the month that showed severe carpal tunnel, and a trigger finger. I was hoping to get this surgery done before school started but the only available date they had was while I was gone back east so for now he is scheduled for Oct.3rd and we've been put on the cancellation list so hopefully somebody cancels on a day that we can get him in.
You guys are so busy. I'm glad the move went well and that Easton's mostly doing well. I'll keep my fingers crossed that you can get his surgery done before October. Enjoy the new place!
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