surgery update

Today was Easton port removal. We arrived at the hospital at 9:30 a.m. and due to an unexpected emergency surgery poor Easton wasn't taken back until around 1 p.m. he never complained though, there were way to many new toys to play with so he was well entertained. The surgery lasted about 1 hour then he went to recovery. The crazy thing about it is that we never heard from the surgeon until he had been in recovery for 1 1/2 hours and they needed them to discharge him to the floor. The Dr. was able to tell us that they removed the port and catheter from the incision on his side but they opened up the incision on his back to see if they could see a reason that he was continuing to leak CSF. They did find that the fluid was again following the track from the catheter placement to his device. So they sewed that up again and they decided to looked as deep as the fascia (sp),and there was a hole there that they stitched shut, so hopefully this will solve all of his leaky problems. They are keeping him flat for tonight and will let him sit up tomorrow and see what happens. With any luck there will be no leaking. He is really sore and itchy again so we are keeping him on pain meds. and benadryl this combo is keeping him comfy. Now the plan for further infusions as far as I know we are going to let him heal for awhile and make sure that with activity and movement there will be no leaking or bulging. If he remains free from leaks we will start infusions by lp's indefinitely or until everyone comes up with an agreeable plan. He definitely won't be receiving another port for quite awhile. We appreciate all of your thoughts and prayers for our family we can truly feel of every ones love for us. Thank You