WOW !!!!

This our good friend and Doctor. Dr. Muenzer he is the doctor that gives Easton his treatments back east. And yes that is him coming to my house. He decided that he would give me a break from traveling and come to Utah for a change. So we gave him dinner and he got the chance to see Easton in his own element, which I think is great because I don't think that even with all of their testing the doctors back east realize just how well Easton is doing. Plus as an added bonus he came to start our first infusion at our local childrens hospital incase you didn't get that WE ARE NOW DOING HIS MONTHLY INFUSIONS IN UTAH. We are so excited to have some normalcy to this crazy life. So on the day of Eastons infusion we met at primary childrens and the days leading up to the infusion I was worried that we would have to go back to sedating him for them because if you hadn't already heard his port broke again and we just had it replaced about a week before. But the night before his infusion he let me munipulate the device well not really muniluplate but he let me touch it and hold it securely without flinching away. So I explained to him that we were going to give him his medicine the next day and he had to hold really still for the doctors he said o.k. I told him if he didn't they would have to give him the yucky nose medicine which he hates (versed). The big day arrived and after being poked already 3 different time trying to get blood he was a little squirmy but after being threatened with the nose medicine he held still got accessed and recieved the medicine without any problems. So yeah for him. we did find out that the tubing looks like it may have started to slip down his spinal canal which means that it may become disconnected from his spine which also means another surgery so if you are reading this please remember Easton in your prayers we are praying that it stays in place and that the researcher will soon find another device that will last and won't brake.

On another note we got the results back from his neuro cognitive testing that was done back in August and if I could get a drum roll please bbbbrrrrrrrddddddd his IQ score went up another 5 points which puts him at 90 within normal ranges still plus his scores in all other areas went up putting at age appropriate for all areas even his vocabulary other than the fact that he's still hard to understand sometimes he's pretty much normal the doctors and researcher are eccstatic with his results so are we.

Kindergarten is going well so far he is adjusting really well and seems to like it. We are starting to work on his home phone and address. After he gets those down we will move on to mine and James cell numbers. I was thinking back to Nathan at this age and realized that Easton has surpassed where Nathan start to decline I remember when he was getting ready for kindergarten and he needed to name and show me the parts of his body he could point to the major ones like arms,legs,belly & etc. but he couldn't tell you the more detailed parts such as chest, elbows, shoulder, knee just to name a few Easton has known these for sometime as well as many more. It leaves you wondering what the future hold for Easton? from here I wouldn't be surprised to see him accomplish many things I never expected.