Easton turned 6 on Nov. 30th and he got to have a friend birthday party. He was so excited and has looked forward to his birthday since about June. We ended up having 15 kids over. I was exhausted by the time they went home I think I was in bed by about 7p.m. that night. One thing that he really wanted at his birthday party was a pinata. So he got one and his dad was brave enough to hold the pinata on the end of a broom handle while 5 and 6 year olds swung a bat at the pinata while they were blind folded scary I thought but he pulled through and the pinata never broke so I had to intervene and help things along. He also got about every toy on his christmas list from his generous friends so that leave us wondering what do we get him for christmas we are clueless now because the last thing he needs is another toy. He has an Ipad, that he uses for gaming and stuff. Any suggestions would be greatly appreciated.
Medically he is still doing very well there hasn't been any further leakage of fluid but do to how recent the last leakage was we had to skip another IT dose on dec.1 this makes his second dose missed It makes me really worried about the build up of gags in the spinal fluid possibly ruining any ground we've gained. But as usual no one knows if the gags have even started to rebuild by missing a couple of doses he is still making great gains cognitivaly and is doing even better in school but who knows how long this can go on. So for now we are scheduled to get dosed on Dec. 29th via LP, and hopefully shortly after that he will have another device placed. And I pray daily that they will find the proper device that will allow these little boys to remain active recieve their medicine and won't break.
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