ever changing ports

These are just a few pics of Easton port problems. These are of the swelling that occurred when the ports broke. One of the pictures is of his back this one was taken a week ago this was after the device had been removed and he was healed from the surgery. After playing for a while I noticed that there was a bulge on the incision on his back that was fluid filled this could only be one thing the hole in the duhra hasn't completely healed and was leaking spinal fluid just under the skin. So we took him up to children's hospital and they were able to look at it and thought that we should give it a week, and see if it has changed. When we took him back up there was still fluid there but not as much as before. The bulge would change sizes with his activity level increasing in size when he was active and decreasing in size when he wasn't. After consulting with the neurosurgeon we decided that this needed to be fixed and that we should probably put in another device as this would be less evasive to Easton rather than each month get an lp even if we had to do surgery every so often to fix a broken one. Now over the weekend his bulging back went completely flat and hasn't bulged out once so for now we are going to watch it, about a week or so and if everything thing works out well he'll receive his next infusion as scheduled. Otherwise he will end up missing 2 doses. I think I forgot to mention that we missed his last dose due to him leaking spinal fluid out of the incision site and them removing the device. Even with missing this dose he has continued to do well in school and there hasn't been any noticeable changes. So I guess we'll see hopefully the gag levels have stayed down and there will be no more problems!!!!!